Day +6 (Wednesday)

 Ugh - Even with the day of the week as the title, I have no idea what day it is!  

Today was catastrophic.  OK, not really, but stick with me.  

When we got to the hospital I realized I forgot my yellow notebook.  I've taken this notebook with me to every appointment since Nov 1.  2 days after our original diagnosis.  2 days after our original diagnosis when I was writing things down like - low blood counts. Risk of infection. Risk of bleeding.  Watch for signs of bleeding/infections (seems intuitive...right?)  

In this notebook I have every lab result, notes from every appointment, questions for future appointments, medications, reasons for medications, and research on just what the heck is multiple myeloma.  

I felt lost without my notebook.  Spoiler alert - we all survived.  

ANYWAY.  Andy didn't sleep amazing last night. No reason, just couldn't stay sleeping.  

We got to our room, weight is maintaining (he ate well yesterday!), temp and BP doing well.  We had a new nurse today - spoiler alert - she was amazing too - and we got to see Aryel - who, again, is just amazed at Andy's reaction to the Stem Cell Transplant! (yay yay yay yay!!!)

We were well prepared for a short, quick visit.  

Until we got our platelet count - down again!  13 from 19 - even with yesterday's TRANSfusion!  So, we both got out our computers and started working, knowing platelets were coming.  

Hg dipped slightly, so curious to see what tomorrow brings.  And WBC are officially 'immeasurable'. Cool.  

Really for the most part the day was still pretty anti-climatic.  We got home and Andy went up to take a nap (about 3 hours off and on for him) and I got back to work.  After working for the day I tried disinfecting all high touch surfaces, our floors, changed our sheets, and changed out all towels.  I'll try to do this every day until we see some progress on Andy's WBC numbers and then move to every other day. 

The kids spent the day with Grandma and Grandpa at the museum today and once again - both came home and wouldn't go near Andy.  They both showered, changed into their house clothes, and then were eager to tell us about their day.  

Another quiet night at the Bach house - all of us on the couch, watching a movie. Early to bed for Andy and hopeful for a restful night!