Tuesday, April 22, 2025

"Monday, April 21"...at that time - Day +32

Monday, Monday. 

Our appointment was at 7 AM...I guess that is what happens after you get a week off - they hit you with 7 AM labs.  

At least our meeting with Doc was at 8 and we wouldn't have to wait as long...until he was running late and we had to wait.  

But we waited with good news.  WBC up to 5.1 from 3.4!  ANC up to 3.0 from 1.73! Platelets were down from 240 to 208.  I don't like it...but I also don't know that it really means anything and we didn't even ask Dr. A about it.  And - he didn't say anything about it - so - let's all move along.  

HgB up to 12.7 from 12.3.   All other numbers stable - and no other numbers discussed by Dr. A.  

BP was up slightly...but I also seem to be the only one that is concerned about that.  (Someone has to worry about here...)

Highlights from our appointment: 

Dr. A is pleased with Andy's progress...but he's still not allowed to go to State Fair - or a Packer's Game.  BUT, he should start getting out into public a little more...we even got clearance to go to a restaurant if we want to.  We are still being overly cautious, because why not.  With the kids and I running around doing essentially everything we need / want we are bringing enough into the house.  Dr. A said Andy's system is ready to fight a bacterial infection, but the lymphocytes (a type of white blood cell (oh heavens...there are TYPES of white blood cells?  This all gets so complicated!)) take a longer time to recover and are used to fight viruses.  Got it?

Dr. A asked Andy how his running went last week - which REALLY gave Andy the boost to get out there.  So today - Andy went out for nearly 2 miles and ran one of them!  Sweaty socks and a sweat rag by the hamper - and they weren't just mine!  Andy was so excited and I am just thrilled for him!!

Our next appointment is scheduled for Day +60 AND (AND AND) we can go to Moorland Reserve for our appointment!!  At Day +60 we'll get a myeloma lab panel just to get a peek at how the look.  

Then next appointment will be Day +100 - in preparation for that appointment we'll get a full work up including bone marrow biopsy and PET Scan (but I already told you all this last week!)

Other home highlights:

Andy tucked Oliver into bed last night!  That means Andy stayed up past 8!  He's gaining his energy little by little every day! 

Andy drank water today and said it "tasted normal".  That ebbs and flows throughout the day - but at least for a moment - it tasted normal!!

AND - I went to Sendiks on Saturday and our absolute favorite beer was in stock (Citra on the Dock from Eagle Park).  I bought a 4 pack (ok, I bought the last 2 4 packs) and Andy and I shared one!  (It's 8% abv...so sharing is the right thing to do!)

So...I imagine things will be relatively quiet on our end for the next few weeks.  I think maybe I need a break from the blog, from cancer, and from updates and let's be honest - you need a break from me.  💕 

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