Well, if you rely on the blog for your Bach Updates - I'm sorry! I forgot to hit publish on the post. So, now you get two today!
Back to the Day Hospital today and, luckily, our trips there are becoming more and more uneventful. We won't complain about going to the hospital, because the last time we complained, we ended up at inpatient...but if I've said it once, I've said it a million times. We are tired. We are tired of driving to the hospital every damn day. We are tired of not really knowing what is next.
Luckily, Andy's numbers are cooperating!
Potassium was still a little low and required a supplement - two pills - NBD (says the girl that doesn't have to swallow two GIANT horse pills!)
WBC were up to 3.9 from 3.6. Not as big of a jump as we (Andy and Dana) would like to see, but doctors seemed impressed with the progress - and just look....almost to the green!!
Hg dipped from 11.9 to 11.6, but as our nurse wrote the number on the board, she said 'Looks good'. So...I guess we shouldn't be concerned.
But, our biggest deal was platelets - this number went from 21 to 23. Now, this isn't the jump we want to see, we want to see this guy double and triple. BUT, what did happen is that Andy did not receive a transfusion of platelets yesterday and STILL that number increased, which means Andy is making platelets on his own!
And, this means, we didn't need a transfusion today (remember that 20 is our threshold) AND....guess what else?!?!
We. Aren't. Going. To. The. Hospital. TOMORROW!!!!!! NO HOSPITAL FOR US! For 17 days we have made the trip to Froedtert and tomorrow, we aren't going!
OK. I just need to pause here. 17 days, is NOT that long in the grand scheme of things. I can think of several people that have made that trip to CHILDREN'S for a substantially longer period than 17 days. Children's! This falls into the category that we if threw all our problems in a pile, you are likely to pick your own problems back. And I do really want to acknowledge these brave warriors.
And now we can have our own little dance party for not going to Froedtert tomorrow. For working a full-day with a real live lunch break!
We'll head back to Froedtert on Saturday (and hopefully not Sunday). Then Monday we go to the Grace Clinic (which is just not the Day hospital) for labs and a meeting with a doctor. Not our doctor, like we originally thought...which has us still a little frustrated and asking, what next? It shows us just how fluid this process is and how it could change in an instant. No one will really commit to 'what's next'.
This is a big challenge for me. But like each step of this journey, we let ourselves feel the frustration and then settle into the here and now and what we know.
We know Andy's numbers are doing what they should.
We know we don't have to go to the hospital tomorrow.
We know we are going to Grace Clinic on Monday.
And we know these are all good things.
OH! And thanks for all the tips on how to stop my hands from cracking and bleeding! I'll be sure to lather up tonight and put on some gloves! You guys are the best!
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