Well hello there! It's been a few days! A much needed break for everyone!
Friday we had off and it was glorious to not go to the hospital. Life felt a teensy, tiny normal. And so to ward off any sense of normalcy...we decided to shave Andy's head.
In the hospital, Andy noticed his hair was starting to fall out in large clumps. This did not change as the week went on. Of course, in the Bach house, you can't just shave your head...you need to have some fun with it. So each kid took a crack at shaving some of dad's head and mom finished if off.
Clearly, I'm biased, but dang if he doesn't look SO HANDSOME! I'm sad he has to be bald because chemo made his hair fall out and cancer made him need chemo...but I like the look!
Saturday we had our appointment at the Day Hospital. WBC took a teeny dip (thank God Aryel told us they might do this!) But dang if those platelets aren't taking off!! We were SO excited to see that! More than double! Hg is still being a little stubborn, and we needed a Potassium supplement as that is still just at threshold. But for the most part, everyone at Day Hospital is really pleased. So we left. We just kind of walked out. And, like, maybe? Maybe we aren't ever going back. It felt strange. It felt a little anti-climatic. It felt good.
We still really wrestle with - what's next? How long do we keep going to Grace Clinic? Are we ever considered 'done'? Andy isn't neutropenic anymore, but when can I stop worrying on windy days that Andy's going to catch something. Can he start eating lunch meat? They don't want him digging in the dirt for several months, so what about everything else?
We try to just 'go with the flow' and still have to remind ourselves to just take each day as it comes. Maybe avoid the lunchmeat and eggs over easy for a little while longer. We are only Day +18 from turning Andy's entire system upside down, so in the grand scheme of things, he's doing pretty freaking amazing!
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